SEGAs
Subependymal giant cell astrocytoma (SEGA) is a type of brain tumor that can develop in patients with tuberous sclerosis complex (TSC).
SEGA tumors are benign (not cancerous), but they can be a danger to you as they grow and take up space in your brain.
SEGA tumors most often form in the middle of the brain, in a part called the foramen of Monro. Here, they may block the flow of fluid between the brain and spinal column. This blockage can increase the pressure in the brain, leading to a condition called hydrocephalus (which is brain swelling). If hydrocephalus is left untreated, it can be life-threatening.
Approximately 80% of People With TSC Have Brain Complications, and Up to 15% Develop SEGA
The Story of TSC Brain Tumors
Watch a short animated film about SEGAs.
The Story of TSC Brain Tumors
Watch a short animated film about SEGAs.
SENs
SENs (subependymal nodules) are small, noncancerous tumors. They are often detected prenatally or at birth and do not get larger. They are different from SEGAs, which are larger tumors.
Signs & Symptoms
SENs do not cause symptoms and stay small in size. SEGAs usually develop during childhood or teenage years and rarely develop in adulthood. But, sometimes, a SEGA is not diagnosed until the tumor has caused symptoms. So, keeping track of any changes in your body is important.
- Headaches
- Problems with eyesight (vision)
- Seizures
- Emotional and behavioral problems