Heart Tumors

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Heart Tumors

Tuberous sclerosis complex (TSC) can cause very rare heart tumors, called cardiac rhabdomyomas, in a small number of patients.

An Early Sign of TSC

Heart Tumors Often Develop Before Birth

These tumors usually do not cause serious medical problems, but they are often the first recognized sign of TSC. The tumors are commonly found in the heart’s chambers, where they sometimes interfere with how your heart’s valves work. These tumors are often seen in people with TSC even before they are born. The good news is that the tumors often shrink and even disappear when children are very young.

 

When These Heart Tumors Are Found in Babies Before They Are Born (in Utero), TSC Is Usually the Cause

illustration of tumors in the heart

Manage the Symptoms

Pediatric cardiologist

Cardiologists specialize in treating and preventing diseases of the heart and blood vessels.

ECG

An electrocardiogram (ECG) is a test that uses electrodes on the skin to record the electrical activity of the heart, to see if it is working properly.

Get the recommended tests and talk with your doctor regularly

Heart tumors with TSC are often diagnosed before birth. Children who are diagnosed with a TSC heart tumor should have an ECG every 1 to 3 years until the tumor fully shrinks.

Children who have symptoms should have more frequent checkups and ECGs.

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