TSC-ASSOCIATED SEIZURES

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Seizures

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Seizures are the most common brain (neurologic) symptom of TSC. In fact, more than 8 of every 10 people with TSC experience this condition. TSC seizures often start in infancy, with most people having them in the first 3 years of life. However, people with TSC who never had seizures in their childhood can still have them when they are adults.

People with TSC can have almost any type of seizure. About 2 in every 3 people with TSC have a type of seizure called partial onset, which affects only a part of the brain. No matter which kind of seizure you or your family member has, it is very important to manage the condition with your neurologist. It is important to know that the earlier people with TSC have their first seizure, the more likely they are to have other brain disabilities, such as autism, mental impairment, or learning issues.

How are TSC seizures treated?


TSC seizures are often treated with antiepileptic medicines. These medicines might provide relief from symptoms of seizures, but they do not address the underlying reason for TSC, which is a genetic condition.

Approximately 60% of people with TSC-associated seizures fail to demonstrate seizure control with available therapies.

Signs & Symptoms

There are several different types of seizures that a person with TSC can have. The signs and symptoms of seizures can vary.


  • Unusual tastes, smells, or feelings
  • Feeling confused, tired, or weak
  • Tingling, numbness, or jerking movements in one part of the body
  • Falling
  • Headaches

Stay Alert

Unfortunately, seizures caused by TSC can be more difficult to control than seizures that occur in people without TSC.

Here's What You Can Do

  • Make a note of each seizure you or your loved one have to determine if there is a pattern.
  • Take your medication correctly. Talk to your doctor if your seizure medicine isn't working as well as you think it should be.
  • Tell your doctor right away if you experience any new types of seizures or changes in your current TSC symptoms.

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