TSC-RELATED KIDNEY SYMPTOMS

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TSC ANGIOMYOLIPOMA

Kidney_Image

Renal angiomyolipoma is a benign growth made up of fatty tissue, blood vessels, and smooth-muscle cells. Angiomyolipoma associated with tuberous sclerosis complex (TSC) can occur in the kidneys.

The kidneys remove waste and excess fluid from the body. This helps to maintain a stable balance of body chemicals. The kidneys also produce hormones that affect the function of other organs.

As an angiomyolipoma grows, it can interfere with the kidneys' ability to work properly. This sometimes causes excessive bleeding or kidney failure.

of patients with TSC develop angiomyolipomas

Signs & Symptoms

  • Blood in the urine
  • Pain in the stomach and/or abdomen

Stay Alert

Angiomyolipomas usually occur during adulthood, but they can develop at any time. That's why people with TSC should have their kidneys checked routinely.

Here's What You Can Do

  • Schedule regular appointments for diagnostic imaging of your kidneys. You will need to do so at the time of diagnosis and then regularly thereafter
  • Stay alert to the signs and symptoms of angiomyolipoma
  • Be sure to talk with your doctor or nurse if you have any other questions about angiomyolipoma with TSC
  • Seek medical attention right away if you notice blood in your urine or pain in your stomach or abdomen
  • Download the TSC Central mobile app for monitoring TSC. You can track appointments, symptoms, test results, and more

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