TSC-RELATED LUNG SYMPTOMS

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LYMPHANGIOLEIOMYOMATOSIS (LAM)

LAM causes lung tumors that lead to breathing problems similar to those seen with emphysema, asthma, and bronchitis.

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  • LAM lung tumors can cause the cells lining the lungs' airways to multiply abnormally
    • These cells spread into areas of the lung where they don't belong
    • The air sacs throughout the lungs also swell and form small pockets called cysts; these cysts destroy normal lung tissue, leading to breathing difficulties

As many as 40% of women with TSC may also be affected with lymphangioleiomyomatosis (LAM)

Signs & Symptoms

  • Shortness of breath
  • Collapsed lung
  • Chest pain
  • Cough
  • Extreme tiredness (fatigue)

Stay Alert

LAM does not usually appear on an x-ray. In fact, because it can only be imaged with a high-resolution computed tomography (HRCT) scan of the chest, many people may go undiagnosed for years. Symptoms are similar to those of asthma, bronchitis, or emphysema, which can delay an accurate diagnosis. So keeping track of any changes in your body is important.

Here's What You Can Do

  • Get your lungs examined regularly and speak with your doctor about LAM
  • Make a note of breathing problems to see if there is a pattern
  • Tell your doctor right away if you experience shortness of breath, chest pain, cough, and/or fatigue
  • Download the TSC Central mobile app for monitoring TSC. You can track appointments, symptoms, test results, and more

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