OTHER TSC-RELATED CONDITIONS

Tuberous sclerosis complex (TSC) can cause several other conditions throughout the body, including in the eyes, mouth, and heart. There can be lesions in the retina of the eye, pits in the enamel of the teeth, and tumors in the heart. Although these growths are usually not life threatening, they are fairly common and should be monitored by your doctor.

Signs & Symptoms

  • Area on the eye that is raised or lighter in color than the surrounding tissue
  • Growths on the gums or pits in the teeth
  • Irregularities in the heart of infants, detected by an ultrasound or magnetic resonance imaging (MRI)

Stay Alert

Keep track of any changes in the appearance of your eyes, your teeth, or inside of your mouth. Note any changes or disturbances in your vision or oral health.

Here’s What You Can Do

  • Get your eyes examined on a regular basis and speak with your doctor about lesions
  • Visit your dentist regularly and discuss how TSC may affect your oral health
  • Talk to your doctor about monitoring the heart of infants and young children at risk for TSC, because these tumors are a major feature in diagnosing TSC
  • Download the TSC Central mobile app for monitoring TSC. You can track appointments, symptoms, test results, and more

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