COGNITIVE & BEHAVIORAL SYMPTOMS OF TSC

Cognitive_Image
Cognitive_Image

Not all people with tuberous sclerosis complex (TSC) have trouble with thinking or experience mood or behavior disorders. It can help to know what the symptoms are and what to expect from cognitive and behavioral conditions. Most important, it can help you get the right support system in place.

CONDITIONS THAT OCCUR IN TSC INCLUDE:

Mood and Behavioral Disorders

  • AnxietyThis occurs in about 30% to 60% of patients with TSC. Anxiety disorders in TSC can include panic disorders, depressive disorders, obsessive-compulsive behaviors, or post-traumatic stress disorder.
  • Autism Spectrum DisorderThe rate of autism in people with TSC ranges from 25% to 50%, and its signs may vary. It could mean difficulty forming normal social relationships, or it may appear as a fixation on repetitive activities.
  • Attention Deficit Hyperactivity Disorder (ADHD)ADHD occurs in about 30% to 50% of people with TSC. The signs include an inability to pay attention, hyperactivity, or impulsive behavior.
  • Aggressive/Disruptive BehaviorHitting, biting, screaming, self-injury, explosive behavior, or anger issues can occur in 40% to 50% of people with TSC. People with these symptoms may also exhibit a lower IQ, have a history of seizures that are difficult to control with medication, or have SENs, SEGAs, and features of autism.

Additional behaviors and conditions can range from depressive disorders, social fears, extreme shyness, and mood swings to psychotic disorders, including schizophrenia.

A Support System Can Help

Specialists such as a psychiatrist or psychologist can help people who have TSC symptoms related to cognition, mood, or behavior.

Approximately 50% of patients with TSC have intellectual disabilities

Signs & Symptoms

  • Difficulty thinking, understanding, and remembering words
  • Increased anxiety, panic, social fears, obsessive-compulsive behaviors, or post-traumatic stress disorder
  • Inability to pay attention, hyperactivity, or impulsive behavior
  • Increase in aggressive behaviors, including hitting, biting, screaming, explosive behavior, or anger

Stay Alert

Keep track of changes in mood, anxiety, thinking, and behavior.

Here's What You Can Do

  • Speak with your doctor about the mental and behavioral symptoms of TSC
  • Keep a journal to ensure that you can track any changes in your thinking or behavior as they occur
  • Tell your doctor right away if you notice changes in your behavior (or if someone mentions it to you)
  • If symptoms related to cognition, mood, or behavior occur, ask your doctor to recommend a professional trained in this area of medicine, such as a psychiatrist, psychologist, or neuropsychologist
  • Download the TSC Central mobile app for monitoring TSC. You can track appointments, symptoms, test results, and more

FIND TSC SPECIALISTS

Take charge of your health and locate a TSC expert in your area.

STAY CURIOUS. SIGN UP TO STAY INFORMED.

Sign up to learn all that you can about TSC, so you can focus on being you.