Explaining TSC

For US residents only.

Explaining TSC

Tell loved ones about tuberous sclerosis complex (TSC). Honest talk with the people you are close to is an important part of living with TSC.

Your Circle of Care

Look for emotional support from family and friends. It’s natural for people with TSC to avoid talking about having TSC. But telling your friends, family, and even coworkers can be important, so they can understand and help support you throughout your journey with TSC.

Patient Support

Join this free program to learn more about TSC.

5 Key Points About TSC

  1. TSC is a lifelong condition.
    TSC can be managed with treatment from doctors who specialize in different areas of the body, such as the brain, the kidneys, and the skin.

  2. TSC affects everyone differently.
    Some people have mild symptoms while others can have severe ones.

  3. Health concerns can change over time.
    As people with TSC age, new tumors can develop in different places.

  4. Having TSC may be challenging.
    But the tumors caused by TSC are not cancerous and can be treated.

  5. Your friends and family can help.
    Support and understanding from friends and family are very important for people with TSC.

 

TSCLife is here to help.

Know what to expect and how to talk to your circle of care.

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